Portfolio Analysis Team Lead
The results of the first comprehensive epilepsy research portfolio analysis were presented at the recent ICARE meeting on April 13th, 2015. The Interagency Collaborative to Advance Research in Epilepsy (ICARE) is a voluntary working group of public and non-profit organizations in the United States that provide sustained funding for epilepsy research and training. ICARE was established and meets annually to better coordinate research-related activities among these groups, and to encourage collaborations where compelling opportunities exist. At the meeting on March 24, 2014 the group discussed and agreed upon the potential benefits of a community-wide portfolio analysis of funded epilepsy research. It would provide a means to better inform the group about the landscape of funded epilepsy research and coordinate strategies, leverage resources, avoid duplication of effort and assess progress being made against the epilepsy research priorities as defined by the 2014 NINDS Benchmarks and the recommendations from the 2012 IOM report “Epilepsy across the Spectrum.” A working group was established and they designed a data collection template for a comprehensive analysis of the funding year 2013. All ICARE member organizations were asked to categorize their funded epilepsy research using the template.
Read more